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Daybreak Children’s Rare Disease Fund
Our mission is to support the best research aimed at the cure of rare genetic diseases.
Daybreak choose as primary beneficiaries of its efforts Fondazione Telethon Italia
and its two world-class research centers, TIGEM and SR-TIGET.
Daybreak Children’s Rare Disease Fund is committed to raise awareness
on rare genetic diseases and to promote timely development and availability
of safe and effective diagnostics and treatments for affected persons.
News & Events
We have a dedicated team of professional fundraisers based in San Diego, California, who work in public and private sites to sign up regular donors to support our work.
A new gene silencing strategy has been developed at the San Raffaele-Telethon Institute for Gene Therapy (SR-Tiget) that allows permanent silencing of genes by acting on epigenetic processes.
The 19th Edition of Fondazione Telethon Italia Scientific Convention took place in Riva del Garda (Italy) on March 13 to 15, 2017.
After almost 6 months, Cecilia (1) went back to Nebraska after 6 months on a SR-TIGET trial. Her brother Giovanni, also affected by MLD, was successfully treated in 2013.
Fondazione Telethon Italia celebrated its 25th Anniversary with a one week fundraising marathon, raising just under $39,000,000.
The 60th anniversary of Ferrari North America, celebrated in Los Angeles on October 11th and 12th, was the first opportunity in the US to get to know Daybreak and support its activities.