Privacy Policy

Terms and conditions / Privacy Policy

Website Privacy Policy

Friends of the Telethon Foundation Italy, Inc. d/b/a Daybreak Children’s Rare Disease Fund ("Daybreak" or "our" or "we" or "us") is committed to responsible information handling practices. You can visit most pages on the Sites (as defined below) without giving us any information about yourself, but sometimes we need information to provide services or information that you request. This Privacy Policy explains data collection and use in those situations. This Privacy Policy also explains the collection and use of personal identifiable information from our donors.  By visiting the Sites, you consent to the information practices described in this Privacy Policy.

This Privacy Policy applies to the following sites: (and each sub-domain associated with this URL) and other websites operated by or for Daybreak (collectively, the "Sites"). This Privacy Policy does not apply to other sites that may be accessible through the Sites. This Privacy Policy does not apply to the practices of persons or entities that Daybreak does not control, manage or employ. The Sites may contain links to other sites that are operated by third parties, including, but not limited to, third party sites that may display the name, trademarks, service marks and logos of Daybreak. We encourage you to read the privacy policies of those other sites to learn how they collect and use information about you.

In order to fully understand your rights, we encourage you to read this Privacy Policy as well as our Terms of Use. Since the Sites will continue to implement new technologies and improve their services and features, this Privacy Policy is subject to change. Daybreak reserves the right at any time and without notice to change this Privacy Policy. If there are changes or additions to this Privacy Policy, we will post those changes here or in other formats that we deem acceptable, so that you will always know what information we collect online, how we use it and what choices you have. All changes will be effective immediately upon posting.  We encourage you to read the entire Privacy Policy.

What type of information does Daybreak COLLECT  and how is the information USED?

While you are visiting the Sites, Daybreak may collect two types of information about users: "Personal Information" (information that can be used alone or in combination with other information to identify you, such as name, email address, mailing address, phone, credit card or debit card, personal preferences and other related information) and "Aggregate Information" (such as information about how many users access or use the Sites on a daily basis).


Personal Information:  Information You Provide to Us

Personal Information is collected online when you voluntarily submit non-public personal information on the Sites by sharing your “story”, submitting an article or an image, requesting information, making an online donation, purchasing our products, signing up for a newsletter or other Services, receiving electronic notices or other similar communications and other similar activities.   Please note that Personal Information stored on the Sites may be collected, stored and processed in the United States of America.  In addition, Daybreak may collect your Personal Information when you voluntarily provide personal identifiable information to us directly, whether in person, by email, by phone, or by direct mail.

We may obtain Personal Information about you ONLY if you elect to give us that information. Types of Personal Information may include, without limitation, the following:

  • Name
  • Address
  • Zip code
  • Telephone/Facsimile number
  • Occupation
  • E-mail address
  • Credit card number and expiration date (for donations or online purchases)
  • Name of organization (where applicable)
  • Relationship to a person suffering from a rare genetic disease 
  • Experience with a rare genetic disease

We may ask you to provide credit card information and other personal identifiable information when purchasing goods that are offered for sale on our Sites. We may also request such personal identifiable information when you make a donation to Daybreak either online or through offline means.  We reserve the right to request any additional information necessary to process the purchase or donation.

Generally, our uses of Personal Information collected online include, without limitation, responding to your inquiry about volunteering time to Daybreak, sharing your “Story” about Daybreak or a person suffering from a rare genetic disease, enabling you to make a donation, purchasing a product from the Sites, or providing information, such as sending marketing communications and newsletters.

Daybreak will retain your Personal Information to fulfill the purposes described in this Privacy Policy. Daybreak will establish minimum and maximum retention periods based upon the type of information collected (i.e., sensitivity), the intended purposes and as otherwise required by law.

Personal Information shall NOT include any personal information posted or sent by or to you in any public forum (such as a message board) on the Sites. Participation in these public forums and Daybreak fundraising initiatives requires the public release and dissemination of such information, and thus Daybreak cannot commit to treating such information confidentially in the same manner that other personal information will be treated under this Privacy Policy. Participation in these programs is voluntary and thus your consent to certain terms is required before participation is allowed.

Daybreak collects limited Personal Information in order to complete a donation transaction, provide charitable giving tax information (where applicable) and for donor acknowledgment.  Daybreak will only share or sell Donor Person Information once the user has given Daybreak specific permission to do so, which permission may include sharing Donor Personal Information with third party payment processer(s) for the limited purpose of completing the donation transaction.  Daybreak does not share Donor Personal Information with other third parties for commercial purposes. 

Aggregate Information:  Collected Automatically

When you visit the Sites, we may automatically collect Aggregate Information about your visit. Collecting this information helps us to improve the Sites to enhance your experience while on our Sites.  Aggregate Information is non-personally identifiable/anonymous information about you, such as pages most frequently accessed by you, time spent on a page or area of the Sites, the number of visits to the Sites by you, types of browser used by you, cookie preferences or search terms entered by you. We can tell the type of computer and web service that you are using, as well as the date, time, and pages that you visit. Aggregate Information is used in a collective manner, and no single person can be identified by that compiled information (for example, the number of people who logged into the Sites in a particular day).


Daybreak also may use Aggregate Information for internal purposes, such as tracking demographic data and providing targeted content to make the Sites more useful to our visitors. The gathering of this Aggregate Information may be accomplished by the use of cookies or web beacons by Daybreak and its third party service providers. In particular, Daybreak may collect an IP Address from all visitors to the Sites. An IP Address is a number that is automatically assigned to your computer when you use the Internet. Daybreak may share Aggregate Information with its research grant recipients, content providers, sponsors, service providers or other third parties to advance the goals of research, education, dissemination or information and otherwise in fulfillment of the Promise. We may use IP addresses to help diagnose problems with our server, administer our Sites, analyze trends, track users’ movement on the Sites, gather broad demographic information for aggregate use in order for us to improve the Sites, and deliver customized, personalized content. IP addresses, however, are not linked to Personal Information. Daybreak also may use a unique assigned number located with the Sites’ URL to determine the website from which you navigated to get to the Sites. While this number may not be apparent to you, it does not contain your Personal Information.

Do Daybreak websites use COOKIES, OTHER TECHNOLOGIES or THIRD PARTIES to INDIRECTLY collect information?

The Sites may use cookies to enhance your experience while using the Sites. A “cookie” is a small piece of data that is sent to your browser from Daybreak’s web server and is stored on your computer’s hard drive.  Cookies are used to collect non-identifying information about the user to make web-surfing easier by performing certain functions such as saving your passwords, your personal preferences regarding your use of the particular website and to make sure you do not see the same ad repeatedly. Many consider the use of cookies to be an industry standard.

Your browser is probably set to accept cookies. However, if you would prefer not to receive cookies, you can alter the configuration of your browser to refuse cookies. If you choose to have your browser refuse cookies, it is possible that some areas of our Sites will not function properly when you view them.

The Sites also may use other technologies to track the specific pages viewed by visitors on the Sites or to target specific content that might be of interest to you. These technologies help us to understand how visitors use the Sites. However, you will have the option to opt out (or opt on if applicable law requires) of receiving such targeted content on those pages of our Sites where this technology is used.

Does Daybreak SHARE the information that I have provided or that has been collected?

Daybreak will not sell or rent any Personal Information to third parties.  We will not use Personal Information to send mailings on behalf of unaffiliated, third party organizations.

Daybreak may need to share certain Personal Information with third parties in limited circumstances. For example, we may release Personal Information to third parties to perform services such as advising you of our upcoming events, products, volunteer opportunities, fundraising and partner-related product opportunities benefiting Daybreak, children’s rare genetic diseases or processing credit card payments or hosting the Sites (and/or features available on the Sites). We may share limited Personal Information with third party payment processor(s) for the limited purpose of completing a donation or purchase. However, such third parties are obligated to maintain the confidentiality of Personal Information and are not authorized to use Personal Information for any purpose other than providing those services. We will not share any “Story” you submit or related medical information without your prior consent, except where required by law.

From time to time, we may be required to provide Personal Information or Aggregate Information in response to a valid court order, subpoena, government investigation, or as otherwise required by law, or if we reasonably believe that you have committed unlawful acts or acts that may endanger the health or safety of another user or the general public. We also reserve the right to report to law enforcement agencies any activities that we, in good faith, believe to be unlawful. We may release certain personal information when we believe that such release is reasonably necessary to protect the rights, property, and safety of others and ourselves.

We also reserve the right to share, assign or transfer your Personal information to any of our affiliates or any successor in interest to our organization by merger, reorganization, or operation of law.

Do I have CHOICES regarding how my Personal Information is used?

If your Personal Information is currently being used by Daybreak or its affiliates to send you marketing communications, you can opt out at any time. All marketing e-mail communications from Daybreak tell you how to stop receiving them; however, to opt out of receiving marketing communications from Daybreak:

  1. E-mail our Executive Director at; or
  2. Follow directions on a marketing e-mail communication from us; or
  3. Send a written request by mail or facsimile to: 

Friends of the Telethon Foundation Italy, Inc.

dba Daybreak Children’s Rare Disease Fund

3501, Via del Prado

Calabasas, CA 91302

Tel. +1 (323)284 4451


Daybreak may make available the public forums on the Sites so that you may have an opportunity to interact with other Site visitors in order to share knowledge and news or participate in fundraising events benefiting Daybreak and its affiliates. Since participation in such forums is voluntary, you control what personal information may be disclosed to others. In order to avoid your email address or other personal information from being gathered and used by others for unsolicited, inappropriate or harmful purposes, Daybreak advises that you should be cautious about posting your email address or phone number or other personal information to newsgroups, blogs, message boards, or other public forums. 

How does Daybreak SECURE my personal information?

In order to prevent unauthorized access and protect your Personal Information, Daybreak has put in place commercially reasonable physical, electronic and administrative safeguards to ensure the security, integrity and privacy of the Personal Information you provide to us. Such security safeguards are intended to be appropriate to the sensitivity of the Personal Information collected. For example, online contributions and shopping are processed using a secure server.  In particular, all Personal Information provided to Daybreak through the use of the Sites is transmitted using Secure Socket Layer (SSL) encryption and Secure Electronic Transaction (SET) protocol.  SSL is secure server software that lets your browser automatically encrypt, or scramble, data before you send it to Daybreak.  Additionally, all transactional data Daybreak collects from you is protected against unauthorized access with the use of digital certificates issued by VeriSign, an established signer of digital certificates.

 Daybreak is committed to properly securing the Personal Information collected by any means. To help us accomplish this, we take the following steps:

  • We employ internal access controls to ensure that the only people who see your information are those with a need to do so to perform their official duties.
  • We train relevant personnel on our privacy and security measures.
  • We physically secure the areas where we hold hard copies of the information that we collect online.
  • We regularly back up the information that we collect online to insure against loss.
  • We use technical controls to secure the information that we collect online as appropriate, including but not limited to: Secure Socket Layer (SSL), encryption, firewalls, and password protections.
  • We periodically test our security procedures to ensure personnel and technical compliance.

To the extent Daybreak transfers any Personal Information to third parties, Daybreak will use commercially reasonable efforts to assure that such third parties to whom it may transfer any Personal Information have knowledge of this Privacy Policy and provide sufficient protection of such Personal Information.  Unfortunately, however, no data transmission over the Internet is 100% secure.  While we strive to protect your information, we cannot ensure or warrant the security of such information nor can we guarantee that information you supply to use will not be intercepted while in transit to us over the Internet.

Does Daybreak collect information from CHILDREN?

Although the mission of Daybreak is to help children with rare genetic diseases, since the Sites are not designed specifically for children, Daybreak does not intentionally collect Personal Information from children under the age of 13. If we discover that we have inadvertently collected Personal Information  from a person under the age of 13, we will automatically delete it.

 If I give Daybreak the name and email address of my FAMILY OR FRIENDS, how is that information used?

If you elect to use any features of the Sites to inform a friend about the Sites or solicit donations or pledges or otherwise communicate, Daybreak may ask for your friend’s name and email address. The Sites may automatically send the friend a one-time email inviting them to visit the Sites or otherwise provide the information requested by you. Daybreak will store this information for the sole purpose of sending this one-time email. Your friend may contact Daybreak to request the removal of this information from our databases.

 Whom can I CONTACT if I have questions or concerns about the Privacy Policy?

If you have questions about our Privacy Policy or if you have a claim concerning our compliance with this Privacy Policy, you can contact Daybreak may be contacted at the contact address listed at the end of this Privacy Policy. Please provide a description of your claims or questions in sufficient detail so as to permit our Privacy Contact to investigate your claims or questions fully and contact you. It is our intent to make available to you through our Privacy Contact specific information about this Privacy Policy and our management of your Personal Information as may be required by applicable law.

What constitutes my acceptance of this Privacy Policy?

By using the Sites, you expressly consent to the use and disclosure of information as described in this Privacy Policy. Your continued use of the Sites after the effective date of any modification to the Privacy Policy will be deemed to be your agreement to the changed terms. You agree to review the Privacy Policy each time you use the Sites so that you are aware of such modifications.

How does Daybreak protect the information that I may provide by telephone or regular mail or in person?

Daybreak implements these same policies and procedures to protect the privacy of any Personal Information voluntarily submitted by you to Daybreak via telephone or regular mail or in person. This includes your “Stories,” articles and images that may contain Personal Information that you have chosen to share with us, excluding the content that you have voluntarily posted on the public forums of our Sites.  If you have any questions about any Personal Information or Donor Personal Information provided by one of these off-line methods, you may contact our Privacy Contact by regular mail or facsimile at the contact address listed in this Privacy Policy.

Where can I get more information about the Privacy Policy?

If you have any questions about this Privacy Policy, please contact us at:

Friends of the Telethon Foundation Italy, Inc.

dba Daybreak Children’s Rare Disease Fund

3501, Via del Prado

Calabasas, CA 91302

Tel. +1 (323)284 4451